RESOURCES
GLOBAL RESOURCES

INTERNATIONAL ORGANIZATIONS

   • International Alliance of ALS / MND Associations
   • Directories of Associations - International Alliance of ALS/MND Associations
   • International Ventilator Users Network
   • World Federation of Neurology Amyotrophic Lateral Sclerosis
   • ALS/MND Clinics – World Federation of Neurology List
   • ABLEDATA - International Resources
   • Disabled Peoples International
   • Growth House - International Resources for End-of-Life Care
   • Independent Living Institute – Grouped by Country
   • International Center for Disability

ALS/MND ORGANIZATIONS OF THE WORLD (listed alphabetically by country)

A | B | C | D | F | G | H | I | J | K | M | N | P | R | S | T | U | Y

AFRICA

Motor Neurone Disease Association of South Africa
P.O. Box 781880
Sandton 2146
Gauteng, South Africa
Tel: 27-21-531-9744 or 27-11-706-4883
Fax: 27-21-531-6222 or 27-11- 463-6855
Contact person: Diane Heron
Email for Diane Heron: dianeh@iafrica.com

ALS of South Africa
Dr. A.H. Borowitz
42 Victoria Street
Oaklands 2192
Johannesburg, South Africa

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ARGENTINA

Asociacion Distrofia Muscular
Dr. Alberto L. Dubrovsky
Cordoba 5824, Buenos Aires 1414 Argentina
Tel: 54-1-773-1714
Fax: 54-1-956-1471 or 54-1-956-0120
Email:

ALS Association of Argentina – Buenos Aires
Capitulo Argentino de Lucha Contra Las Enfermedades de la Motoneurona (CALMo)
http://www.calmo.org.ar/

The ALS Association
Argentina Support Group
Enrique G. Saint John
Lateral Amiotrofica
Callao 66, ler. Pise
Buenos Aires 1022 Argentina

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AUSTRALIA

Motor Neurone Disease Association of Australia (MNDAA)
Mavis Gallienne
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Fax: 61-3-9830-2228
Email: mndvic@vicnet.net.au
Email for Mavis Gallienne: gallienne@dcsi.net.au
http://www.mndaust.asn.au/

Motor Neurone Disease Association of Victoria (MNDAV)
265 Canterbury Rd.
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Tel: 1-800-80-6632 (Toll-free in Australia)
Fax: 61-3-9830-2228
Email: info@mnd.asn.au
http://www.mnd.asn.au/

Motor Neurone Disease Association of New South Wales (MNDANSW)
Concord Repatriation General Hospital
Hospital Road
Concord 2139
New South Wales, Australia
Tel: 61-2-9743-5872
Fax: 61-2-9743-0526
Email: mndansw@netspace.net.au
http://www.mndnsw.asn.au/

Motor Neurone Disease Association of Western Australia (MNDAWA)
Claisebrook Lotteries House
33 Moore Street
East Perth 6004
Western Australia
Tel: 61-8-9325-3291
Fax: 61-8-9325-3292
Email: staff@mndawa.iinet.net.au
http://mndawa.iinet.net.au/

Motor Neurone Disease Association of Queensland (MNDAQ)
P.O. Box 259
Corinda 4075
Queensland, Australia
Tel: (07) 3372-9004
Fax: (07) 3278-9871
Email: admin@mndaq.asn.au
http://www.mndaq.asn.au/

Motor Neurone Disease Association of Tasmania (MNDAT)
P.O. Box 379
Sandy Bay 7006
Tasmania
Tel: (0500) 827-663
Email: kevin.anderson@bigpond.com

Motor Neurone Disease Association of ACT
The Pearce Centre
Collett Place
Pearce 2607
ACT, Australia
Tel: (02) 6287-4343
Fax: (02) 6287-4344

Motor Neurone Disease Association of South Australia
23A King William Road
Unley 5061
South Australia
(or)
P.O. Box 359
Unley 5066
South Australia
Tel: (08) 8357-0245
Fax: (08) 8373-0572

Motor Neurone Disease Research Institute of Australia
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Fax: 61-3-9830-2228
Email: mndria@vicnet.net.au
http://www.vicnet.net.au/~mndri

Neurological Resource Centre (NRC) – South Australia
23A King William Road
Unley 5061
South Australia
Tel: (08) 8357-8909
Fax: (08) 8357-8876
Email: nrc@camtech.net.au

ALS - Motor Neurone Disease Research Institute
Dr. Dawn Thew
P.O. Box 635
Gordon 2072
New South Wales, Australia
Tel: 61-2-498-7960
Fax: 61-2-498-7960

Keith’s OZPALS Homepage – “The Sunbeam Family”
http://www.petrie.starway.net.au/~sunbeams/ OR
http://www.petrie.hotkey.net.au/~sunbeams/

OZ PALS – Network of Australian Persons with ALS/MND
OZPALS is the Australian and New Zealand network of anyone touched by
ALS/MND - sufferers, caregivers, family members, friends, medical fraternity.
http://ozpals.8m.com/
Australians and New Zealanders subscribe to OZPALS at:
http://www.ozpals@onelist.com

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BELGIUM

ALS – Liga
Zelfhulpgroep België vzw.
(ALS Support Group Belgium)
Bondgenotenlaan 131
3000 Leuven, Belgium
Tel: +32 (0)16/29.81.40
Fax: +32 (0)16/29.81.40
Email: alssecretariaat@pi.be
http://www.ALS-MND.be

Association Belge Contre les Maladies Neuro-Musculaires (ABMM)
rue du Blanc Bois 2 - 1360 Perwez, Belgium
Tel: 32-081-65-58-85
Fax: 32-081-65-58-85
cpte n°: 001-2127789-73
Email: ABMM@village.uunet.be

Belgian ALS Ligue
http://home.planetinternet.be/~alsvzwbe/test/qd000000.html

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BRAZIL

Associacao Brasileira de Esclerose Lateral Amiotrofica
(Brazilian Association of Amyotrophic Lateral Sclerosis)
Dr. Fernando C. Capovilla
Rua Pedro de Toledo 377, San Paulo, SP Brazil
Tel: 55-11-818-4002
Fax: 55-11-818-4909
Email for Dr. Capovilla: capovilla@usp.br

Associacao Brasileira de Distrofia Muscular
Edificio da Biologia, Sala 348
Cidade Universitaria, San Paulo, SP Brazil

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BULGARIA

Plamen Pintev Bulgarian Neuromuscular Disease Association
(Bulgarian Neuromuscular Diseases Association)
96 Pliska Str. Entr. 2, App. 4
Rousse 7004, Bulgaria
Tel: 359-82-237045
Fax: 359-82-452055

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CANADA

ALS Society of Canada
265 Yorkland Blvd, Suite 300
Toronto, Ontario, M2J 1S5
Tel: 1-416-497-2267
Tel: 1-800-267-4257 (Toll-free in Canada)
Fax: 1-416-497-1256
Email: alscanada@als.ca
http://www.als.ca

Regional Units of the “ALS Society of Canada

ALS Society of Alberta
320 - 23rd Avenue SW, Suite 400
Calgary, Alberta, T2S 0J2
Tel: 1-403-228-3857
Tel: 1-888-309-1111 (Toll-free in Alberta only)
Fax: 1-403-228-7752
Email: info@alsab.ca
http://www.alsab.ca/

ALS Society of Alberta – Edmonton Resource Centre
11456 Jasper Avenue, Suite 410
Edmonton, Alberta, T5K 0N1
Tel: 1-780-487-0754
Fax: 1-780-486-3604
Email: patricia@alsab.ca (Patricia Ordynek)

ALS Society of British Columbia
#119-1600 West 6th Avenue
Vancouver, British Columbia, V6J 1R3
Tel: 1-604-685-0737
Tel: 1-800-708-3228 (Toll-free in Canada)
Tel: 1-604-878-1600 (Special Events Line)
Fax: 1-604-685-0725
Email: info@alsbc.ca
http://www.alsbc.ca/

ALS Society of Manitoba
Deer Lodge Centre, N108 N. Pavilion
2109 Portage Avenue
Winnipeg, Manitoba, R3J 0L3
Tel: 1-204-831-1510
Fax: 1-204-837-9023
Email: als@deerlodge.mb.ca
http://www.alsmb.ca/

ALS Society of Metropolitan Toronto & Area
265 Yorkland Blvd, Suite 300A
Toronto, Ontario, M2J 1S5
Tel: 1-416-497-2267
Tel: 1-800-267-4257 (Toll-free in Canada)
Fax: 1-416-497-1256
Email: alstor@idirect.com

ALS Society of Ontario
265 Yorkland Blvd, Suite 300B
Toronto, Ontario, M2J 1S5
Tel: 1-416-497-2267
Tel: 1-800-267-4257 (Toll-free in Canada)
Fax: 1-416-497-1256
Email: info@alsont.ca
http://www.alsont.ca/

ALS Society of New Brunswick
P.O. Box 295
Moncton, New Brunswick, E1C 8K9
Tel: 1-506-888-1091
Fax: 1-506-388-7466
Email: ssmallwood@nb.aibn.com (Shirley Smallwood)

ALS Society of Newfoundland & Labrador
P.O. Box 844
Cornerbrook, Newfoundland, A2H 6H6
Tel: 1-709-634-2435
Fax: 1-709-634-0058
Email: alssocietyofnfld@nf.aibn.com

ALS Society of Nova Scotia
318 - 7071 Bayers Road
Halifax, Nova Scotia, B3L 2C2
Tel: 1-902-454-3636
Fax: 1-902-453-3646
Email: info@alsns.ca

ALS Society of Prince Edward Island
RR #1
Crapaud, PEI, COA 1JO
Tel: 1-902-685-2175
Email: qhospice@isn.net (Andrea Conway)

ALS Society of Quebec
3958 Dandurand Street
Montreal, Quebec, H1X 1P7
Tel: 1-514-725-2653
Tel: 1-877-725-7725 (Toll-free in Quebec)
Fax: 1-514-725-6184
Email: info@sla-quebec.ca
http://www.als-quebec.ca/

INFO-SLA of Quebec (not affiliated with the ALS Society of Canada)
INFO-SLA is a French-speaking Web site
http://iquebec.ifrance.com/info-sla/

ALS Society of Saskatchewan
Box 31028
Normanview Mall
Regina, Saskatchewan, S4R 8R6
Tel: 1-306-949-4100
Fax: 1-306-949-4020
Email: alssocietyofsask@sk.sympatico.ca

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COLUMBIA

Ivan Dario Arteaga Fundacion Omega
Carrera 30 No. 89-79 (La Castellana)
Bogota Columbia
Tel: 57-1-236-5004
Fax: 57-1-218-3315

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CROATIA

Union of Muscular Dystrophy Societies of Croatia
Marija Sostarko
Nova Ves 44, 10000 Zagreb, Croatia
Tel: 385-1-466-6849
Fax: 385-1-466-6849
Email for Marija Sostarko: marija.sostarko@zg.tel.hr

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CYPRUS

Cyprus Institute of Neurology and Genetics
Dr. Theodore Kyriakides
P.O. Box 3462, Nicosia, Cyprus
Tel: 357-2-358600
Fax: 357-2-358238

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DENMARK

Muskelsvindfonden
(The Danish Muscular Dystrophy Association)
Kongsvang Allé 23
DK-8000 Arhus C, Denmark
Tel: 45-89-48-22-22
Fax: 45-89-48-22-12
Email: msfoplys@post1.tele.dk
Danish Version: http://www.muskelsvindfonden.dk/
English Version: http://www.muskelsvindfonden.dk/engelsk.html

Danish ALS Society
Lojesouej
3670 VEKSO (ST) Denmark
Tel: 45-2-17-01-00

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FINLAND

Lihastautiliitto (The Finnish Neuromuscular Disorders Association)
Läntinen Pitkäkatu 35
20100 Turku, Finland
Tel: 358-2-273-9700
Fax: 358-2-273-9701
Email: keskuststo@lihastautiliitto.fi (central office)
Email: eila.ahokas@lihastautiliitto.fi (Eila Ahokas)
http://www.lihastautiliitto.fi/

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FRANCE

Association pour la Recherche sur la Sclérose Latérale Amyotrophique (ARS)
Claude Blanchard
24 rue Lacharriére
75011 Paris, France
Tel: 33-1-43-38-99-89
Fax: 33-1-43-38-31-59
Email: ars@wanadoo.fr
http://www.ars.asso.fr/

Association Lutte et Soutien Maladies du Motoneurone (ALS - France)
Service de Neurologie et Maladies Neuromusculaires
CHU la Timone, 13005 Marseille, France
Tel: 33-4-91-38-65-80
Fax: 33-4-91-38-65-80
Email: alsfrance@infonie.fr
Email: als.leroi@infonie.fr (Michel LEROI)
http://www.multimania.com/als/

Centre SLA Salpêtrière Fédération de Neurologie
Dr. Vincent Meininger, M.D. – Professor of Neurology
l'Hôpital de la Pitié-Salpêtrière
47 Boulevard de l'Hôpital
75013 Paris, France
Tel: 33-14216-0426
Fax: 33-14424-3269
Email for Dr. Vincent Meininger: vincent.meininger@psl.ap-hop-paris.fr

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GERMANY

Deutsche Gesellschaft für Muskelkranke e.V. (DGM)
(German Association for Muscle Diseases)
Horst Ganter
Im Moos 4
79112 Freiburg, Germany
Tel: 49-7665-94470
Fax: 49-7665-944720
Email: DGM_BGS@t-online.de (Helga Klier)
http://www.dgm.org/
ALS Forum At: http://www.dgm.org/forum/index.html

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GUAM

Guam Lytico and Bodig Association
Madeleine Z. Bordallo
P.O. Box 1458
Agana 96910 Guam
Tel: 671-477-2293
Fax: 671-477-2294

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HONG KONG

MND/ALS Society
Micky Kui
c/o Rhone-Poulenc Rorer Ltd.
7/F Jardine Engineering House
260 King's Road, North Point, Hong Kong
Tel: 852-2503-3393
Fax: 852-2570-7120

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ICELAND

MND Félag Íslands
(The Icelandic MND Society)
Nordurbaut 41, 220 Hafnarfjordur, Iceland
Tel: 354-565-5727
Fax: 354-555-4374
Email: mnd@islandia.is
http://www.islandia.is/mnd

MND Félag Íslands
(The Icelandic MND Association)
Nordurbaut 41, 220 Hafnarfjordur, Iceland
Tel: 354-565-2004
Fax: 354-555-2632
http://www.islandia.is/mnd

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INDIA

Motor Neurone Disease (MND) Association of India (MNDAI)
Nicky Bhagat
40 Kolagarh Road, Street No. 5
Dehradun, UA 248001, India
Tel: 00 91 135 2754487
Fax: 91-135-623675
Email: nickleodeon@sancharnet.in
Email for Nicky Bhagat: sumitrabhagat@hotmail.com

Indian Muscular Dystrophy Association (IMDA)
R. Janardana Rao
21-136, Batchupet, Malchilipatnam (AP) 521 001 India
Tel: 91-8672-2817

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IRELAND

Irish Motor Neurone Disease Association (IMNDA)
Eithne Frost
Carmichael House
North Brunswick Street
Dublin 7, Ireland
Tel: 353-1-873-0422
Fax: 353-1-873-5737
Email: eithne@iolfree.ie
http://www.iol.ie/~killeen/stevemnd/imndesc.htm

Steve Killeen’s Web Site – In association with the
“Irish Motor Neurone Disease Association” (IMNDA)
http://www.iol.ie/~killeen/stevemnd/stevehom.htm OR
http://www.iol.ie/%7Ekilleen/stevemnd/stevehom.htm

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ISRAEL

ATLAS, Israel ALS/MND Association
Dr. Vivian E. Drory
6 Hashachaf, BatGalim, Haifa 35013, Israel
Tel: 972-4-8513058
Fax: 972-4-8513059
Email: reis@netvision.net.il
Email for Dr. Vivian Drory: vdrory@post.tau.ac.il

Neuromuscular and ALS Clinic
Department of Neurology
Sourasky Medical Center, 64239
Tel-Aviv, Israel
Tel: 972-3-6973689
Fax: 972-3-6973414
Email for Dr. Vivian Drory: vdrory@post.tau.ac.il
Medical Director: Vivian E. Drory, M.D. – Neurologist

Israel ALS Association
Stanley Shreiber
Kehilet Vilna 4 A, Ramat Hasharon 47220, Israel
Tel: 972-3-9341255
Fax: 972-3-9341220

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ITALY

Associazione Italiano Sclerosi Lateral Amiotrofia (AISLA)
Via Andrea Costa
2/A 28100 Novara NO Italy
Tel: 39-0321-392861
Fax: 39-0321-392861
Email: segreteria@aisla.it
http://www.aisla.it/

Associazione Sclerosi Lateral Amiotrofia
c/o Centro Medico di Riabilitazione
Via Per Revislate
28010 Veruno NO Italy
Tel: 39-0322-830101
Fax: 39-0322-830294
Email: aisla@mail.fausernet.novara.it

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JAPAN

Japan Amyotrophic Lateral Sclerosis Association (JALSA)
7-103 Nando-cho, Shinjuku-ku, Tokyo, 162-0837 Japan
Tel: 81-3-3267-6942
Fax: 81-3-3267-6940
Email: jalsa@jade.dti.ne.jp
http://www.jade.dti.ne.jp/~jalsa/

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KOREA

Department of Neurology, College of Medicine – Seoul National University
Kwang-Woo Lee
28 Yongon-Dong, Chongno-Gu
Seoul 110-744 Korea
Tel: 82-2-760-3215
Fax: 82-2-744-1785

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MALAYSIA

Malaysian MNDA
Prof. M. Ali Noor Ghani
c/o Malaysian Invention and Design Society
Taman Teknologi Malaysia
Lot 10, Jalan Jaya 5, Taman Jaya, Bandar Tun Razak, 56000
Kuala Lumpur, Malaysia
Tel: 60-3-931-5846
Fax: 60-3-930-0349

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MALTA

The Malta Hospice Movement
35 Good Shepherd Avenue
Balzan BZN 16, Malta
Tel: 356-442473
Fax: 356-484769
Email: hospice@vol.net.mt

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MEXICO

FYADENMAC (Familiares y Amigos de Enfermos de la Neurona Motora AC)
Mr. Armando Nava Escobedo
Maestro Rural Num, 74, Col. Un Hogar para Nostros, 11330 D.F. Mexico
Tel: 52-5-341-1591
Fax: 52-5-341-1121
Email: fyadenmac@yahoo.com

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NETHERLANDS

Vereniging Spierziekten Nederland (VSN) – ALS Diagnostic Support Group
(Dutch Neuromuscular Disease Association)
Lt. Gen. van Heutszlaan 6
3743 JN Baarn, The Netherlands
Tel: 31-35-548-0480
Fax: 31-35-548-0499
Email: vsn@vsn.nl
Dutch Version: http://www.vsn.nl
English Version: http://www.vsn.nl/english.htm

ALS Diagnosis Group
This group is part of the “Vereniging Spierziekten Nederland” (VSN)
Lt. Gen. van Heutszlaan 6
3743 JN Baarn, The Netherlands
Tel: 31-35-548-0480
Fax: 31-35-548-0499

Valscherm
Email: info@valscherm.nl
http://www.valscherm.nl/

ALS Research Fund - Stichting ALS Onderzoekfonds
Mr. Eric Trietsch
van Clevelaan 8
3723 PG Bilthoven, The Netherlands
Tel: 31-30-253-3591
Fax: 31-30-253-3665

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NEW ZEALAND

Motor Neurone Disease Association of New Zealand
P.O. Box 2129
Wellington, New Zealand
Tel: 64-4-473-5555
Fax: 64-4-473-5626
Email: info@mndanz.org.nz
http://www.mndanz.org.nz/

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NORWAY

Kontaktgruppen for ALS
Bjorg Hille Griman
Foreningen for Muskelsyke
Hardangervegen 314, 5232 Helldal, Norway

Kontaktgruppen for ALS
Egil Sakshaug
Foreningen for Muskelsyke
Massabergveien 20 N-7710 Sparbu, Norway
Tel: 47-71143872

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PAKISTAN

Ma Ayesha Memorial Center for care & control of Neuromuscular Diseases
Shahida Abdullah
SNPA-22 Block 7/8 (near commercial area)
FMCHS, Karachi, Pakistan

Association of Physically Disabled Persons (Regd)
House 2 Street 40 – F
7/1 Islambad, Pakistan

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PHILIPPINES

The ALS Association Philippines Support Group
Joel Abad Pelayo
78 Masikap Extension Central District
Quezon City 1100 Philippines
Tel: 63-2-922-8274
Fax: 63-2-922-9199

The ALS Association Philippines Support Group
Martesio C. Perez, M.D. Neurologist
Makati Medical Center
Suite E-3 First Floor
Makati, Metro Manila, Philippines

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PORTUGAL

Associacao Portuguesa de Eaclerose Lateral Amiotrofica (APELA)
Association of Portuguese ALS Patients
Apartado 1107, 2780 Paco D'Arcos, Portugal
Tel: 351-1-915-1388
Fax: 351-1-915-1342
Email: costeira@hotmail.com (Hugo Costeira)

Associacao Portuguesa de Duencas Neuomusculares
Fernando Moragdo
Servico de Neurologica, Hospital de Santa Maria
7600 Lisboa, Portugal
Tel: 351-1-797-8821
Fax: 351-1-797-7782

Associacao Portuguesa de Duencas Neuromusculares
Fernando Moragdo
Servico de Neurologica, Hospital de Santa Maria
1699 Lisboa Codex, Portugal
Tel: 351-1-797-6882
Fax: 351-1-797-6882

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ROMANIA

Neuromuscular Diseases Association of Romania
Dr. C. Vasilescu
Institute of Neurology
C.P. 44-12, RO-75128 Bucharest, Romania
Tel: 40-1-3306273
Fax: 40-1-3213964

AHNR (Asociatia Handicapatilor Neuromotori din Romania)
Ioana Monica Antoci
Str. Sava Tekelija Nr. 2
Arad 2900 Romania
Tel: 40-9-6615126 or 40-5-7280582
Fax: 40-5-7250161

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SCOTLAND

Scottish Motor Neurone Disease Association
76 Firhill Road
Glasgow, G20 7BA, Scotland, UK
Tel: 44-141-945-1077
Fax: 44-141-945-2578
Email: info@scotmnd.sol.co.uk
http://www.scotmnd.org.uk/index.htm

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SPAIN

ADELA – Asociación Española de Esclerosis Lateral Amiotrofica (ELA)
C/ Hierbabuena, 12 - 28039 Madrid, Spain
P.O. Box: 40030 - 28080 Madrid, Spain
Tel: 902-142-142
Fax: 902-118-369
Email: adela@readysoft.es
http://www.advernet.es/adela/
Email: adela@adelaweb.com
http://www.adelaweb.com/

ADELA C.V. – Asociación Valenciana de Esclerosis Lateral Amiotrofica (ELA)
Mosen Jordi, 6 / 46018, Valencia, Spain
Tel: 34-6-3794016
Fax: 34-6-3836976
Email: adela@seker.es (Javier Ruiz)
http://www.adela-cv.org/
Usenet newsgroup: es.charla.enfermedad.ela

ADELA – Asociación de Esclerosis Lateral Amiotrofica (ELA)
ALS association in the Basque Country and Navarre (Spain)
http://www.adelavasconavarra.com/

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SWEDEN

NHR (Neurologiskt Handikappades Riksforbund)
Box 3284
S-103 65 Stockholm, Sweden
Tel: 46-8-6777010
Fax: 46-8-241315
Email: nhr@nhr.se

NHR ALS Referensgroup
ALS-Netvork
Länsmansvägen 42, S-236 31 Höllviken, Sweden
Tel: 46 40 45 39 00
Fax: 46 46 20 7330
Email: cg.berndt@telia.com

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SWITZERLAND

Association Suisse Romande Contre la Myopathie (ASRM)
12 chemin de la Traverse
P.O. Box 179
1170 Aubonne, Switzerland
Tel: 41-21-808-7411
Fax: 41-21-808-8111
Email: asrm@planet.ch

International ALS/MND Research Foundation
W. Parlette
Tiradelza de Monteggio
Termine CH-6998 Switzerland
Tel: (41) (91) 73-21-52
Fax: (41) (91) 73-22-32

MND Support Group
Sarah Browne
19 Chemin des Curiades
1233 Lully-Geneve, Switzerland
Tel: 41-22-757-4866 or 41-22-774-4646
Fax: 41-22-757-1582 or 41-22-774-4674

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TAIWAN

Taiwan Motor Neuron Disease Association
Neuromuscular Service - Veterans General Hospital
201 Shih-Pai Road, Sec.11
Taipei, Taiwan 11217 Republic of China
Tel: 886-2287-57585
Fax: 886-2287-57584 or 886-2287-65212
Email: cptsai@vghtpe.gov.tw

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TUNISIA

ALS Society of Tunisia
Prof. M. Ben Hamida
Institut de Neurologie, La Rabta 1007 Tunisia

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TURKEY

Association of Muscle Disorders
Prof. Coskum Osdemir
Yesilkoy, Hatboyu cad. No. 12, 34800 Istanbul, Turkey
Tel: 90-212-593-0975 or 90-212-663-6553
Fax: 90-212-663-0168
Email: Coskunoz@superonline.com

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UGANDA

The Biruduma Muscular Dystrophy Association
P.O. Box 596
Mbarara, Uganda

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UNITED KINGDOM

International Alliance of ALS / MND Associations
Motor Neurone Disease Association – England, Wales and Northern Ireland
(Home Address of the “International Alliance of ALS/MND Associations”)
P.O. Box 246
Northampton NN1-2PR
United Kingdom
Tel: 44-1604-250505
Fax: 44-1604-638289 or 44-1604-624726

Motor Neurone Disease Association – United Kingdom
P O Box 246
Northampton
Northamptonshire NN1-2PR United Kingdom
The MND Association
www.mndassociation.org
Tel: 44-1 604-250505
Fax: 44-1604-624726

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UNITED STATES

The ALS Association – USA – National Office
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104 USA
Tel: 1-818-880-9007
Fax: 1-818-880-9006
Tel: 1-800-782-4747 (Toll-free Patient Hot Line)
Email: alsinfo@alsa-national.org
www.alsa.org

Muscular Dystrophy Association (MDA) – USA National Headquarters
3300 East Sunrise Drive
Tucson, AZ 85718 USA
Tel: 1-800-572-1717 (Toll-free in USA)
Tel: 1-520-529-2000
Fax: 1-520-529-5417
Email: mda@mdausa.org
http://www.mdausa.org

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URUGUAY

MONDELA (Asociacíon Nacional para la Lucha contra las Enfermadedes
Motorneuronales o Esclerosis Lateral Amiotrofica)
Dr. O. Vincent
Colonia 1752, Montevideo, Uruguay 11400
Tel: 598-2-709-4990
Fax: 598-2-401-8188 or 598-2-619-6461
Email:

MNDALSU (Motor Neurone Disease & Amiotrofia Lateral Esclerosis in Uruguay)
Dr. O. Vincent
Ave. Italia 3318, Montevideo, Uruguay
Tel: 598-2-471616
Fax: 598-2-475461
Email:

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YUGOSLAVIA

Yugoslavia MND Association
11000 Belgrade, Yugoslavia
Tel: 381-11-684-355
Fax: 381-11-684-577
Email: zsmndyu@hotmail.com

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