RESOURCES
GLOBAL RESOURCES

INTERNATIONAL ORGANIZATIONS

   • International Alliance of ALS / MND Associations
   • Directories of Associations - International Alliance of ALS/MND Associations
   • International Ventilator Users Network
   • World Federation of Neurology Amyotrophic Lateral Sclerosis
   • ALS/MND Clinics – World Federation of Neurology List
   • ALS CARE International
   • ABLEDATA - International Resources
   • Disabled Peoples International
   • Growth House - International Resources for End-of-Life Care
   • Independent Living Institute – Grouped by Country
   • International Center for Disability

ALS/MND ORGANIZATIONS OF THE WORLD (listed alphabetically by country)

A | B | C | D | F | G | H | I | J | K | M | N | P | R | S | T | Y

AFRICA

Motor Neurone Disease Association of South Africa
P.O. Box 781880
Sandton 2146
Gauteng, South Africa
Tel: 27-21-531-9744 or 27-11-706-4883
Fax: 27-21-531-6222 or 27-11- 463-6855
Contact person: Diane Heron
Email for Diane Heron: dianeh@iafrica.com

ALS of South Africa
Dr. A.H. Borowitz
42 Victoria Street
Oaklands 2192
Johannesburg, South Africa

ARGENTINA

Asociacion Distrofia Muscular
Dr. Alberto L. Dubrovsky
Cordoba 5824, Buenos Aires 1414 Argentina
Tel: 54-1-773-1714
Fax: 54-1-956-1471 or 54-1-956-0120
Email:

ALS Association of Argentina – Buenos Aires
Capitulo Argentino de Lucha Contra Las Enfermedades de la Motoneurona (CALMo)
http://www.calmo.org.ar/

The ALS Association
Argentina Support Group
Enrique G. Saint John
Lateral Amiotrofica
Callao 66, ler. Pise
Buenos Aires 1022 Argentina

AUSTRALIA

Motor Neurone Disease Association of Australia (MNDAA)
Mavis Gallienne
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Fax: 61-3-9830-2228
Email: mndvic@vicnet.net.au
Email for Mavis Gallienne: gallienne@dcsi.net.au
http://home.vicnet.net.au/~mndaust/

Motor Neurone Disease Association of Victoria (MNDAV)
265 Canterbury Rd.
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Tel: 1-800-80-6632 (Toll-free in Australia)
Fax: 61-3-9830-2228
Email: info@mnd.asn.au
http://www.mnd.asn.au/

Motor Neurone Disease Association of New South Wales (MNDANSW)
Concord Repatriation General Hospital
Hospital Road
Concord 2139
New South Wales, Australia
Tel: 61-2-9743-5872
Fax: 61-2-9743-0526
Email: mndansw@netspace.net.au
http://www.mndnsw.asn.au/

Motor Neurone Disease Association of Western Australia (MNDAWA)
Claisebrook Lotteries House
33 Moore Street
East Perth 6004
Western Australia
Tel: 61-8-9325-3291
Fax: 61-8-9325-3292
Email: staff@mndawa.iinet.net.au
http://mndawa.iinet.net.au/

Motor Neurone Disease Association of Queensland (MNDAQ)
P.O. Box 259
Corinda 4075
Queensland, Australia
Tel: (07) 3372-9004
Fax: (07) 3278-9871
Email: admin@mndaq.asn.au
http://www.mndaq.asn.au/

Motor Neurone Disease Association of Tasmania (MNDAT)
P.O. Box 379
Sandy Bay 7006
Tasmania
Tel: (0500) 827-663
Email: kevin.anderson@bigpond.com

Motor Neurone Disease Association of ACT
The Pearce Centre
Collett Place
Pearce 2607
ACT, Australia
Tel: (02) 6287-4343
Fax: (02) 6287-4344

Motor Neurone Disease Association of South Australia
23A King William Road
Unley 5061
South Australia
(or)
P.O. Box 359
Unley 5066
South Australia
Tel: (08) 8357-0245
Fax: (08) 8373-0572

Motor Neurone Disease Research Institute of Australia
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Fax: 61-3-9830-2228
Email: mndria@vicnet.net.au
http://www.vicnet.net.au/~mndri

Neurological Resource Centre (NRC) – South Australia
23A King William Road
Unley 5061
South Australia
Tel: (08) 8357-8909
Fax: (08) 8357-8876
Email: nrc@camtech.net.au
http://www.span.com.au/nrc/index.html

ALS - Motor Neurone Disease Research Institute
Dr. Dawn Thew
P.O. Box 635
Gordon 2072
New South Wales, Australia
Tel: 61-2-498-7960
Fax: 61-2-498-7960

Keith’s OZPALS Homepage – “The Sunbeam Family”
http://www.petrie.starway.net.au/~sunbeams/ OR
http://www.petrie.hotkey.net.au/~sunbeams/

OZ PALS – Network of Australian Persons with ALS/MND
OZPALS is the Australian and New Zealand network of anyone touched by
ALS/MND - sufferers, caregivers, family members, friends, medical fraternity.
http://ozpals.8m.com/
Australians and New Zealanders subscribe to OZPALS at:
http://www.ozpals@onelist.com

BELGIUM

ALS – Liga
Zelfhulpgroep België vzw.
(ALS Support Group Belgium)
Bondgenotenlaan 131
3000 Leuven, Belgium
Tel: +32 (0)16/29.81.40
Fax: +32 (0)16/29.81.40
Email: alssecretariaat@pi.be
http://www.ALS-MND.be

Association Belge Contre les Maladies Neuro-Musculaires (ABMM)
rue du Blanc Bois 2 - 1360 Perwez, Belgium
Tel: 32-081-65-58-85
Fax: 32-081-65-58-85
cpte n°: 001-2127789-73
Email: ABMM@village.uunet.be

Belgian ALS Ligue
http://home.planetinternet.be/~alsvzwbe/test/qd000000.html

BRAZIL

Associacao Brasileira de Esclerose Lateral Amiotrofica
(Brazilian Association of Amyotrophic Lateral Sclerosis)
Dr. Fernando C. Capovilla
Rua Pedro de Toledo 377, San Paulo, SP Brazil
Tel: 55-11-818-4002
Fax: 55-11-818-4909
Email for Dr. Capovilla: capovilla@usp.br

Associacao Brasileira de Distrofia Muscular
Edificio da Biologia, Sala 348
Cidade Universitaria, San Paulo, SP Brazil

BULGARIA

Plamen Pintev Bulgarian Neuromuscular Disease Association
(Bulgarian Neuromuscular Diseases Association)
96 Pliska Str. Entr. 2, App. 4
Rousse 7004, Bulgaria
Tel: 359-82-237045
Fax: 359-82-452055

CANADA

ALS Society of Canada
265 Yorkland Blvd, Suite 300
Toronto, Ontario, M2J 1S5
Tel: 1-416-497-2267
Tel: 1-800-267-4257 (Toll-free in Canada)
Fax: 1-416-497-1256
Email: alscanada@als.ca
http://www.als.ca

Regional Units of the “ALS Society of Canada

ALS Society of Alberta
320 - 23rd Avenue SW, Suite 400
Calgary, Alberta, T2S 0J2
Tel: 1-403-228-3857
Tel: 1-888-309-1111 (Toll-free in Alberta only)
Fax: 1-403-228-7752
Email: info@alsab.ca
http://www.alsab.ca/

ALS Society of Alberta – Edmonton Resource Centre
11456 Jasper Avenue, Suite 410
Edmonton, Alberta, T5K 0N1
Tel: 1-780-487-0754
Fax: 1-780-486-3604
Email: patricia@alsab.ca (Patricia Ordynek)

ALS Society of British Columbia
#119-1600 West 6th Avenue
Vancouver, British Columbia, V6J 1R3
Tel: 1-604-685-0737
Tel: 1-800-708-3228 (Toll-free in Canada)
Tel: 1-604-878-1600 (Special Events Line)
Fax: 1-604-685-0725
Email: info@alsbc.ca
http://www.alsbc.ca/

ALS Society of Manitoba
Deer Lodge Centre, N108 N. Pavilion
2109 Portage Avenue
Winnipeg, Manitoba, R3J 0L3
Tel: 1-204-831-1510
Fax: 1-204-837-9023
Email: als@deerlodge.mb.ca
http://www.alsmb.ca/

ALS Society of Metropolitan Toronto & Area
265 Yorkland Blvd, Suite 300A
Toronto, Ontario, M2J 1S5
Tel: 1-416-497-2267
Tel: 1-800-267-4257 (Toll-free in Canada)
Fax: 1-416-497-1256
Email: alstor@idirect.com

ALS Society of Ontario
265 Yorkland Blvd, Suite 300B
Toronto, Ontario, M2J 1S5
Tel: 1-416-497-2267
Tel: 1-800-267-4257 (Toll-free in Canada)
Fax: 1-416-497-1256
Email: info@alsont.ca
http://www.alsont.ca/

ALS Society of New Brunswick
P.O. Box 295
Moncton, New Brunswick, E1C 8K9
Tel: 1-506-888-1091
Fax: 1-506-388-7466
Email: ssmallwood@nb.aibn.com (Shirley Smallwood)

ALS Society of Newfoundland & Labrador
P.O. Box 844
Cornerbrook, Newfoundland, A2H 6H6
Tel: 1-709-634-2435
Fax: 1-709-634-0058
Email: alssocietyofnfld@nf.aibn.com

ALS Society of Nova Scotia
318 - 7071 Bayers Road
Halifax, Nova Scotia, B3L 2C2
Tel: 1-902-454-3636
Fax: 1-902-453-3646
Email: info@alsns.ca

ALS Society of Prince Edward Island
RR #1
Crapaud, PEI, COA 1JO
Tel: 1-902-685-2175
Email: qhospice@isn.net (Andrea Conway)

ALS Society of Quebec
3958 Dandurand Street
Montreal, Quebec, H1X 1P7
Tel: 1-514-725-2653
Tel: 1-877-725-7725 (Toll-free in Quebec)
Fax: 1-514-725-6184
Email: info@sla-quebec.ca
http://www.als-quebec.ca/

INFO-SLA of Quebec (not affiliated with the ALS Society of Canada)
INFO-SLA is a French-speaking Web site
http://iquebec.ifrance.com/info-sla/

ALS Society of Saskatchewan
Box 31028
Normanview Mall
Regina, Saskatchewan, S4R 8R6
Tel: 1-306-949-4100
Fax: 1-306-949-4020
Email: alssocietyofsask@sk.sympatico.ca

COLUMBIA

Ivan Dario Arteaga Fundacion Omega
Carrera 30 No. 89-79 (La Castellana)
Bogota Columbia
Tel: 57-1-236-5004
Fax: 57-1-218-3315

CROATIA

Union of Muscular Dystrophy Societies of Croatia
Marija Sostarko
Nova Ves 44, 10000 Zagreb, Croatia
Tel: 385-1-466-6849
Fax: 385-1-466-6849
Email for Marija Sostarko: marija.sostarko@zg.tel.hr

CYPRUS

Cyprus Institute of Neurology and Genetics
Dr. Theodore Kyriakides
P.O. Box 3462, Nicosia, Cyprus
Tel: 357-2-358600
Fax: 357-2-358238

DENMARK

Muskelsvindfonden
(The Danish Muscular Dystrophy Association)
Kongsvang Allé 23
DK-8000 Arhus C, Denmark
Tel: 45-89-48-22-22
Fax: 45-89-48-22-12
Email: msfoplys@post1.tele.dk
Danish Version: http://www.muskelsvindfonden.dk/
English Version: http://www.muskelsvindfonden.dk/engelsk.html

Danish ALS Society
Lojesouej
3670 VEKSO (ST) Denmark
Tel: 45-2-17-01-00

FINLAND

Lihastautiliitto (The Finnish Neuromuscular Disorders Association)
Läntinen Pitkäkatu 35
20100 Turku, Finland
Tel: 358-2-273-9700
Fax: 358-2-273-9701
Email: keskuststo@lihastautiliitto.fi (central office)
Email: eila.ahokas@lihastautiliitto.fi (Eila Ahokas)
http://www.lihastautiliitto.fi/

FRANCE

Association pour la Recherche sur la Sclérose Latérale Amyotrophique (ARS)
Claude Blanchard
24 rue Lacharriére
75011 Paris, France
Tel: 33-1-43-38-99-89
Fax: 33-1-43-38-31-59
Email: ars@wanadoo.fr
http://www.ars.asso.fr/

Association Lutte et Soutien Maladies du Motoneurone (ALS - France)
Service de Neurologie et Maladies Neuromusculaires
CHU la Timone, 13005 Marseille, France
Tel: 33-4-91-38-65-80
Fax: 33-4-91-38-65-80
Email: alsfrance@infonie.fr
Email: als.leroi@infonie.fr (Michel LEROI)
http://www.multimania.com/als/

Centre SLA Salpêtrière Fédération de Neurologie
Dr. Vincent Meininger, M.D. – Professor of Neurology
l'Hôpital de la Pitié-Salpêtrière
47 Boulevard de l'Hôpital
75013 Paris, France
Tel: 33-14216-0426
Fax: 33-14424-3269
Email for Dr. Vincent Meininger: vincent.meininger@psl.ap-hop-paris.fr

GERMANY

Deutsche Gesellschaft für Muskelkranke e.V. (DGM)
(German Association for Muscle Diseases)
Horst Ganter
Im Moos 4
79112 Freiburg, Germany
Tel: 49-7665-94470
Fax: 49-7665-944720
Email: DGM_BGS@t-online.de (Helga Klier)
http://www.dgm.org/
ALS Forum At: http://www.dgm.org/forum/index.html

GUAM

Guam Lytico and Bodig Association
Madeleine Z. Bordallo
P.O. Box 1458
Agana 96910 Guam
Tel: 671-477-2293
Fax: 671-477-2294

HONG KONG

MND/ALS Society
Micky Kui
c/o Rhone-Poulenc Rorer Ltd.
7/F Jardine Engineering House
260 King's Road, North Point, Hong Kong
Tel: 852-2503-3393
Fax: 852-2570-7120

ICELAND

MND Félag Íslands
(The Icelandic MND Society)
Nordurbaut 41, 220 Hafnarfjordur, Iceland
Tel: 354-565-5727
Fax: 354-555-4374
Email: mnd@islandia.is
http://www.islandia.is/mnd

MND Félag Íslands
(The Icelandic MND Association)
Nordurbaut 41, 220 Hafnarfjordur, Iceland
Tel: 354-565-2004
Fax: 354-555-2632
http://www.islandia.is/mnd

INDIA

Motor Neurone Disease (MND) Association of India (MNDAI)
Nicky Bhagat
40 Kolagarh Road, Street No. 5
Dehradun, UA 248001, India
Tel: 00 91 135 2754487
Fax: 91-135-623675
Email: nickleodeon@sancharnet.in
Email for Nicky Bhagat: sumitrabhagat@hotmail.com

Indian Muscular Dystrophy Association (IMDA)
R. Janardana Rao
21-136, Batchupet, Malchilipatnam (AP) 521 001 India
Tel: 91-8672-2817

IRELAND

Irish Motor Neurone Disease Association (IMNDA)
Eithne Frost
Carmichael House
North Brunswick Street
Dublin 7, Ireland
Tel: 353-1-873-0422
Fax: 353-1-873-5737
Email: eithne@iolfree.ie
http://www.iol.ie/~killeen/stevemnd/imndesc.htm

Steve Killeen’s Web Site – In association with the
“Irish Motor Neurone Disease Association” (IMNDA)
http://www.iol.ie/~killeen/stevemnd/stevehom.htm OR
http://www.iol.ie/%7Ekilleen/stevemnd/stevehom.htm

ISRAEL

ATLAS, Israel ALS/MND Association
Dr. Vivian E. Drory
6 Hashachaf, BatGalim, Haifa 35013, Israel
Tel: 972-4-8513058
Fax: 972-4-8513059
Email: reis@netvision.net.il
Email for Dr. Vivian Drory: vdrory@post.tau.ac.il

Neuromuscular and ALS Clinic
Department of Neurology
Sourasky Medical Center, 64239
Tel-Aviv, Israel
Tel: 972-3-6973689
Fax: 972-3-6973414
Email for Dr. Vivian Drory: vdrory@post.tau.ac.il
Medical Director: Vivian E. Drory, M.D. – Neurologist

Israel ALS Association
Stanley Shreiber
Kehilet Vilna 4 A, Ramat Hasharon 47220, Israel
Tel: 972-3-9341255
Fax: 972-3-9341220

ITALY

Associazione Italiano Sclerosi Lateral Amiotrofia (AISLA)
Via Andrea Costa
2/A 28100 Novara NO Italy
Tel: 39-0321-392861
Fax: 39-0321-392861
Email: segreteria@aisla.it
http://www.aisla.it/

Associazione Sclerosi Lateral Amiotrofia
c/o Centro Medico di Riabilitazione
Via Per Revislate
28010 Veruno NO Italy
Tel: 39-0322-830101
Fax: 39-0322-830294
Email: aisla@mail.fausernet.novara.it

JAPAN

Japan Amyotrophic Lateral Sclerosis Association (JALSA)
7-103 Nando-cho, Shinjuku-ku, Tokyo, 162-0837 Japan
Tel: 81-3-3267-6942
Fax: 81-3-3267-6940
Email: jalsa@jade.dti.ne.jp
http://www.jade.dti.ne.jp/~jalsa/

KOREA

Department of Neurology, College of Medicine – Seoul National University
Kwang-Woo Lee
28 Yongon-Dong, Chongno-Gu
Seoul 110-744 Korea
Tel: 82-2-760-3215
Fax: 82-2-744-1785

MALAYSIA

Malaysian MNDA
Prof. M. Ali Noor Ghani
c/o Malaysian Invention and Design Society
Taman Teknologi Malaysia
Lot 10, Jalan Jaya 5, Taman Jaya, Bandar Tun Razak, 56000
Kuala Lumpur, Malaysia
Tel: 60-3-931-5846
Fax: 60-3-930-0349

MALTA

The Malta Hospice Movement
35 Good Shepherd Avenue
Balzan BZN 16, Malta
Tel: 356-442473
Fax: 356-484769
Email: hospice@vol.net.mt

MEXICO

FYADENMAC (Familiares y Amigos de Enfermos de la Neurona Motora AC)
Mr. Armando Nava Escobedo
Maestro Rural Num, 74, Col. Un Hogar para Nostros, 11330 D.F. Mexico
Tel: 52-5-341-1591
Fax: 52-5-341-1121
Email: fyadenmac@yahoo.com

NETHERLANDS

Vereniging Spierziekten Nederland (VSN) – ALS Diagnostic Support Group
(Dutch Neuromuscular Disease Association)
Lt. Gen. van Heutszlaan 6
3743 JN Baarn, The Netherlands
Tel: 31-35-548-0480
Fax: 31-35-548-0499
Email: vsn@vsn.nl
Dutch Version: http://www.vsn.nl
English Version: http://www.vsn.nl/english.htm

ALS Diagnosis Group
This group is part of the “Vereniging Spierziekten Nederland” (VSN)
Lt. Gen. van Heutszlaan 6
3743 JN Baarn, The Netherlands
Tel: 31-35-548-0480
Fax: 31-35-548-0499

Valscherm
Email: info@valscherm.nl
http://www.valscherm.nl/

ALS Research Fund - Stichting ALS Onderzoekfonds
Mr. Eric Trietsch
van Clevelaan 8
3723 PG Bilthoven, The Netherlands
Tel: 31-30-253-3591
Fax: 31-30-253-3665

NEW ZEALAND

Motor Neurone Disease Association of New Zealand
P.O. Box 2129
Wellington, New Zealand
Tel: 64-4-473-5555
Fax: 64-4-473-5626
Email: info@mndanz.org.nz
http://www.mndanz.org.nz/

NORWAY

Kontaktgruppen for ALS
Bjorg Hille Griman
Foreningen for Muskelsyke
Hardangervegen 314, 5232 Helldal, Norway

Kontaktgruppen for ALS
Egil Sakshaug
Foreningen for Muskelsyke
Massabergveien 20 N-7710 Sparbu, Norway
Tel: 47-71143872

PAKISTAN

Ma Ayesha Memorial Center for care & control of Neuromuscular Diseases
Shahida Abdullah
SNPA-22 Block 7/8 (near commercial area)
FMCHS, Karachi, Pakistan

Association of Physically Disabled Persons (Regd)
House 2 Street 40 – F
7/1 Islambad, Pakistan

PHILIPPINES

The ALS Association Philippines Support Group
Joel Abad Pelayo
78 Masikap Extension Central District
Quezon City 1100 Philippines
Tel: 63-2-922-8274
Fax: 63-2-922-9199

The ALS Association Philippines Support Group
Martesio C. Perez, M.D. Neurologist
Makati Medical Center
Suite E-3 First Floor
Makati, Metro Manila, Philippines

PORTUGAL

Associacao Portuguesa de Eaclerose Lateral Amiotrofica (APELA)
Association of Portuguese ALS Patients
Apartado 1107, 2780 Paco D'Arcos, Portugal
Tel: 351-1-915-1388
Fax: 351-1-915-1342
Email: costeira@hotmail.com (Hugo Costeira)

Associacao Portuguesa de Duencas Neuomusculares
Fernando Moragdo
Servico de Neurologica, Hospital de Santa Maria
7600 Lisboa, Portugal
Tel: 351-1-797-8821
Fax: 351-1-797-7782

Associacao Portuguesa de Duencas Neuromusculares
Fernando Moragdo
Servico de Neurologica, Hospital de Santa Maria
1699 Lisboa Codex, Portugal
Tel: 351-1-797-6882
Fax: 351-1-797-6882

ROMANIA

Neuromuscular Diseases Association of Romania
Dr. C. Vasilescu
Institute of Neurology
C.P. 44-12, RO-75128 Bucharest, Romania
Tel: 40-1-3306273
Fax: 40-1-3213964

AHNR (Asociatia Handicapatilor Neuromotori din Romania)
Ioana Monica Antoci
Str. Sava Tekelija Nr. 2
Arad 2900 Romania
Tel: 40-9-6615126 or 40-5-7280582
Fax: 40-5-7250161

SCOTLAND

Scottish Motor Neurone Disease Association
76 Firhill Road
Glasgow, G20 7BA, Scotland, UK
Tel: 44-141-945-1077
Fax: 44-141-945-2578
Email: info@scotmnd.sol.co.uk
http://www.scotmnd.org.uk/index.htm

SPAIN

ADELA – Asociación Española de Esclerosis Lateral Amiotrofica (ELA)
C/ Hierbabuena, 12 - 28039 Madrid, Spain
P.O. Box: 40030 - 28080 Madrid, Spain
Tel: 902-142-142
Fax: 902-118-369
Email: adela@readysoft.es
http://www.advernet.es/adela/
Email: adela@adelaweb.com
http://www.adelaweb.com/

ADELA C.V. – Asociación Valenciana de Esclerosis Lateral Amiotrofica (ELA)
Mosen Jordi, 6 / 46018, Valencia, Spain
Tel: 34-6-3794016
Fax: 34-6-3836976
Email: adela@seker.es (Javier Ruiz)
http://www.adela-cv.org/
Usenet newsgroup: es.charla.enfermedad.ela

ADELA – Asociación de Esclerosis Lateral Amiotrofica (ELA)
ALS association in the Basque Country and Navarre (Spain)
http://www.adelavasconavarra.com/

SWEDEN

NHR (Neurologiskt Handikappades Riksforbund)
Box 3284
S-103 65 Stockholm, Sweden
Tel: 46-8-6777010
Fax: 46-8-241315
Email: nhr@nhr.se

NHR ALS Referensgroup
ALS-Netvork
Länsmansvägen 42, S-236 31 Höllviken, Sweden
Tel: 46 40 45 39 00
Fax: 46 46 20 7330
Email: cg.berndt@telia.com

SWITZERLAND

Association Suisse Romande Contre la Myopathie (ASRM)
12 chemin de la Traverse
P.O. Box 179
1170 Aubonne, Switzerland
Tel: 41-21-808-7411
Fax: 41-21-808-8111
Email: asrm@planet.ch

International ALS/MND Research Foundation
W. Parlette
Tiradelza de Monteggio
Termine CH-6998 Switzerland
Tel: (41) (91) 73-21-52
Fax: (41) (91) 73-22-32

MND Support Group
Sarah Browne
19 Chemin des Curiades
1233 Lully-Geneve, Switzerland
Tel: 41-22-757-4866 or 41-22-774-4646
Fax: 41-22-757-1582 or 41-22-774-4674

TAIWAN

Taiwan Motor Neuron Disease Association
Neuromuscular Service - Veterans General Hospital
201 Shih-Pai Road, Sec.11
Taipei, Taiwan 11217 Republic of China
Tel: 886-2287-57585
Fax: 886-2287-57584 or 886-2287-65212
Email: cptsai@vghtpe.gov.tw

TUNISIA

ALS Society of Tunisia
Prof. M. Ben Hamida
Institut de Neurologie, La Rabta 1007 Tunisia

TURKEY

Association of Muscle Disorders
Prof. Coskum Osdemir
Yesilkoy, Hatboyu cad. No. 12, 34800 Istanbul, Turkey
Tel: 90-212-593-0975 or 90-212-663-6553
Fax: 90-212-663-0168
Email: Coskunoz@superonline.com

UGANDA

The Biruduma Muscular Dystrophy Association
P.O. Box 596
Mbarara, Uganda

UNITED KINGDOM

International Alliance of ALS / MND Associations
Motor Neurone Disease Association – England, Wales and Northern Ireland
(Home Address of the “International Alliance of ALS/MND Associations”)
P.O. Box 246
Northampton NN1-2PR
United Kingdom
Tel: 44-1604-250505
Fax: 44-1604-638289 or 44-1604-624726

Motor Neurone Disease Association – United Kingdom
P O Box 246
Northampton
Northamptonshire NN1-2PR United Kingdom
The MND Association
www.mndassociation.org
Tel: 44-1 604-250505
Fax: 44-1604-624726

USA

The ALS Association – USA – National Office
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104 USA
Tel: 1-818-880-9007
Fax: 1-818-880-9006
Tel: 1-800-782-4747 (Toll-free Patient Hot Line)
Email: alsinfo@alsa-national.org
www.alsa.org

Muscular Dystrophy Association (MDA) – USA National Headquarters
3300 East Sunrise Drive
Tucson, AZ 85718 USA
Tel: 1-800-572-1717 (Toll-free in USA)
Tel: 1-520-529-2000
Fax: 1-520-529-5417
Email: mda@mdausa.org
http://www.mdausa.org

ALS Care International
"The Glass Tower"
4450 Belden Village Street NW
Suite 202
Canton, Ohio 44718 USA
330-492-4ALS
Toll free: 866-TEAM-ALS
Fax: 330-492-9ALS
info@alscareinternational.org
www.alscareinternational.org

URUGUAY

MONDELA (Asociacíon Nacional para la Lucha contra las Enfermadedes
Motorneuronales o Esclerosis Lateral Amiotrofica)
Dr. O. Vincent
Colonia 1752, Montevideo, Uruguay 11400
Tel: 598-2-709-4990
Fax: 598-2-401-8188 or 598-2-619-6461
Email:

MNDALSU (Motor Neurone Disease & Amiotrofia Lateral Esclerosis in Uruguay)
Dr. O. Vincent
Ave. Italia 3318, Montevideo, Uruguay
Tel: 598-2-471616
Fax: 598-2-475461
Email:

YUGOSLAVIA

Yugoslavia MND Association
11000 Belgrade, Yugoslavia
Tel: 381-11-684-355
Fax: 381-11-684-577
Email: zsmndyu@hotmail.com