ABOUT ALS

a·my·o·troph·ic lat·er·al scle·ro·sis
ˌāˌmīəˌträfik ˌladərəl skləˈrōsəs

noun: amyotrophic lateral sclerosis
a degenerative disease of the motor neurons in adults causing weakness of the affected skeletal muscles, including the respiratory muscles

THE RESPIRATORY OUTCOME OF ALS

The hallmark signs of early respiratory muscle weakness are the inability to fully inhale and exhale, a weak cough, and a reduced voice volume.

ALS ultimately results in respiratory failure due to the progression of respiratory muscle weakness.  Respiratory failure can be prevented and treated with use of noninvasive or invasive breathing support.  People with ALS have life choices and need to indicate their wishes in their Advance Directives.

*** Education on life choices is necessary
for making informed choices and fulfilling
patient wishes. ***

LIFE CHOICES
  1. Noninvasive (nasal/oral) ventilation (NIV): positive pressure air is delivered from a ventilator (small, portable machine) through the nose and/or mouth and into the lungs to support breathing.  NIV can be tolerated unless oral secretions become severe.    

  2. Tracheostomy invasive ventilation (TIV): positive pressure air is delivered from a ventilator (small, portable machine) through a tracheostomy (surgical opening in the neck) and into the lungs to support breathing.  TIV supports breathing beyond respiratory failure, despite severe oral secretions.  Use of TIV can be long term.  Progressive disability does not cause death.  ALS patients have the right to stop TIV, if desired.
  3. Comfort (hospice) care: indicated if NIV is no longer tolerated due to severe oral secretions and tracheostomy invasive ventilation is not desired.
MECHANICS OF RESPIRATION

What is ALS?

UNDERSTANDING ALS

Click the button below for an informational PDF to read about getting help on  planning the best life outcomes

WHO HAS ALS

Check out a list of well known people with ALS

ALS DIAGNOSIS

Click below for the revised criteria for diagnosis of ALS

  • Facebook Icon
ABOUT US

ALS Care Project is the only 501(c)3 nonprofit organization whose primary mission is to educate on best practices of ALS care for best patient outcomes.

ADDRESS

330.492.4ALS (4257)

330.497.1792 - ALS Nurse Line

BELDEN GLASS TOWER

4450 Belden Village St. NW

Ste. 216 - Canton, Ohio 44718​

SUBSCRIBE FOR EMAILS

© 2020 ALS Care Project. Proudly maintained by UB Advertising