ALS CARE PROJECT BOARD OF DIRECTORS
PAMELA A. CAZZOLLI, RN
Director, ALS Care Project;
ALS Care Specialist;
Consulted with hundreds of ALS patients and their care providers since 1984; ongoing follow-up included visiting hundreds of ALS patients at their homes and care facilities;
A pioneer investigator on use of nasal/oral ventilation in ALS patients based in the community setting (in which studies began in 1990);
Long-term, prospective, observational studies of ALS patients using tracheostomy ventilation (TV) at their homes and care facilities;
In 2000, founded ALS Care Project, originally called ALS/Neuromuscular Education and Research Fund;
Provided numerous programs in Ohio, the USA, and abroad through the years on optimal care for ALS;
Authored numerous articles on best practices of ALS care;
Co-organized the ALS Association Chapter (now called the Northern Ohio Chapter) in 1988, and served as the Nurse Consultant of the ALSA Chapter (1988-2000);
Served as the first Nurse Coordinator of the ALS Center at the Cleveland Clinic Foundation (1989–1995);
Co-facilitated the first ALS Support Group in Canton, Ohio, sponsored by the former Visiting Nurse Society of Stark County (1984 - 2000);
An Allied Health Member of the American College of Chest Physicians
(ACCP) since 1999; served on the steering committee of the Home Care
Network for years;
A member of the American Association of Respiratory Care (AARC) since 2000;
Serves on the Respiratory Care Advisory Board of Stark State College,
Canton, Ohio, USA (since 1999);
Long-term investigator of potential risk factors associated with the onset of ALS.
BETH PHILLIPS, Physical Therapist - President
Beth Phillips is President of ALS Care Project. She is a physical therapist who has specialized in the rehabilitation of people with neurologic disorders and stroke patients at Mercy Medical Center for 40 years. In addition, Beth has educated numerous ALS patients and family caregivers at the Canton ALS Support Group since 1990 on enhancing mobility, comfort and safety, including transfer techniques, fall prevention and preventing complications of immobility. Beth Phillips has truly demonstrated her passion for helping people with ALS achieve best patient outcomes.
KATHALEEN O'BRIEN, Esq - Vice President
Kathaleen O’Brien, Vice President of ALS Care Project, is an attorney whose practice is in the heart of downtown Canton by the Stark County Courthouse. She began serving ALS Care Project in 2018 because of her passion for the cause of ALS. Kathaleen obtained a Juris Doctor degree from the University of Akron School of Law. Since 2014, her private practice as a lawyer has focused on family and criminal defense. Prior to pursuing law, Kathaleen obtained a BA degree in Psychology from Malone University, became a licensed social worker and worked at the Crisis Intervention Center for 19 years. Kathaleen is a lifetime resident of Stark County.
JOHN L. PARKER, CPA, MT - Treasurer
John Parker is a CPA and Treasurer of ALS Care Project. He has faithfully served the organization since 2004 due to his passion for the mission and standards of excellence of ALS Care Project. In private practice, John provides accounting and tax preparation services for numerous clients in the community.
JOHANNE SIMONE - Secretary
Johanne is Secretary of ALS Care Project. She has served as a faithful volunteer since 2005 due to her passion for the ALS care mission. Johanne’s father had ALS. She understands the vital need for accurate and necessary information for achieving best patient outcomes.
TIMOTHY PINGLE, PhD - Education Committee, Chairman
Dr. Timothy Pingle understands the challenges of someone living with ALS and their loved ones. Time has slipped away since his step-mother turned to ALS Care Project for managing and coping with her ALS diagnosis. Nevertheless, he recognizes that education on best practices of ALS care is essential for achieving best patient outcomes. Past President of ALS Care Project, Dr. Pingle currently chairs the Education Committee as methods of education on evidenced based care for ALS are planned. He received his Ph.D. in Education Administration from the University of South Carolina and an Accounting degree from the University of Akron. For years, he worked as a teacher, curriculum specialist and principal in the public schools in South Carolina. Education is his passion.
Since his retirement from teaching and school administration, Dr. Pingle now resides in Canton and serves as a financial adviser for Western and Southern Financial Group helping individuals and business owners plan for retirement (614-551-9175).
SHERYL HOLT, PT, PhD - Research Chairman
Director, Physical Therapy Program, University of Mount Union, Alliance, Ohio
Associate Professor, University of Mount Union
Research Chairman, ALS Care Project
PhD, Rehabilitation Science University of Kentucky
Advanced Masters, Allied Health, Ohio State University
BS, Physical Therapy, Georgia State University
Past Director of the Spinal Muscular Atrophy/ALS Clinic at Ohio State University, Neuromuscular Disease Division
CAROL STANLEY, RN
Carol Stanley is a registered nurse with years of experience in providing excellent care. Carol specializes in long-term care for people with disabilities and has a passion for people with ALS. Her core values as a nurse include standards of excellence, dedication to the cause, and ethical practice.
JOAN C. WARREN, MSW - Honorary Member
Social worker, Joan C. Warren, MSW, is a founding member of ALS Care Project. Ms. Warren has faithfully served the ALS community since 1983 when she began as a social worker at the former Visiting Nurse Society of Stark County in Canton, Ohio after obtaining her Master’s Degree in Social Work from the University of Connecticut. Joan Warren first met Pamela Cazzolli on March 18, 1984 at the Canton ALS Support Group, initially sponsored by the VNS. Through the years, the two worked together as a team in serving the ALS community. This included the two co-facilitating the Canton ALS Support Group together on Sunday afternoons bi-monthly for 24 consecutive years.
In 2000, Joan Warren helped Ms. Cazzolli launch ALS Care Project to pursue the ALS care mission. Although Joan Warren has retired from serving as a social worker, she remains as a cherished Honorary Member of ALS Care Project.
REV. JAMES RUFFIN - Honorary Member
Rev. Ruffin is an Honorary Board Member of ALS Care Project. Through the years, he has provided encouragement and support to many ALS families. He also serves on the Ethics Committee of the ALS Care Project.
EYAD NASHAWATI, MD - Medical Advisor, ALS Care Project
Pulmonary Physicians Inc.
2600 Tuscarawas St. West
Canton, OH 44708
Phone: (330) 452-8844
PATRICIA SHAHEEN - Honorary Member
Patricia Leo Shaheen is a Past President of ALS Care Project. She knows first-hand about the multiple problems associated with ALS and the need for best practices of care. Through the years, nine members of her immediate family were stricken with the familial form of ALS: her mother, brother, sister, two aunts and four cousins.
Patricia lives in Canton with her husband and teenage son. She graduated from Malone University in Canton, Ohio with a Bachelor of Science degree in Business Management. Today she is an aesthetician and specializes in skin care.
TIFFANY SLOVAN - Honorary Member
Tiffany Slovan previously served for years as President of ALS Care Project, after moving to Canton, Ohio in 2006 with her husband and four children. Tiffany was born and raised in Youngstown Ohio. From the beginning, Tiffany’s life had been deeply impacted by ALS due to four of her beloved family members who had the disease. Those affected were two of her cousins on one side of the family, her dear aunt on the other side, and her loving step-father who was unrelated to the others.
Through the years, Tiffany often assisted in providing care to each of her ALS loved ones. As a result, Tiffany had always been deeply compassionate about education on best practices of ALS care for achieving best patient outcomes. Dedicated to the cause, Tiffany assisted and spoke at educational programs, often provided encouragement at support meetings and helped plan many events. In 2015, Tiffany moved to Fort Wayne, Indiana, where she currently serves as Director of Business Development of Lutheran Life Villages. Despite the distance, Tiffany continues to help carry the mission of ALS Care Project.