HISTORY OF ALS CARE PROJECT
ALS Care Project (ALSCP) was established as a nonprofit organization in 2000 to pursue a mission of clinical research and education to achieve best practices of ALS care. The project evolved from over sixteen years (1984-2000) of effort by Pamela A. Cazzolli, RN to help people with ALS live the best life possible. As a nurse, she became alarmed by the high prevalence of ALS patients who faced undesired outcomes and the minimal information in the literature on evidenced based ALS care.
In 1990 Cazzolli pioneered investigations of ALS patients using noninvasive breathing support to improve breathing and living. Through the years, Cazzolli consulted with hundreds of ALS families and healthcare providers on the options for care. To pursue the mission for achieving best patient outcomes, ALSCP was launched with the help of social worker, Joan C. Warren, MSW.