BEST MANAGEMENT OF ALS CARE

FOR THE BEST PATIENT OUTCOMES

TO EDUCATE ON

CDC STUDY

Help us identify the incidences of

ALS in OHIO

WELCOME TO THE ALS CARE PROJECT

Amyotrophic lateral sclerosis (ALS), also known in the USA as “Lou Gehrig’s Disease,” is a degenerative disease of the motor neurons. Motor neurons are the nerve cells in the brain, brain stem and spinal cord that contract the voluntary skeletal muscles for moving the body and pumping air into and out of the lungs.  

Because ALS selectively destroys motor neurons, ALS is a motor neuron disease.  ALS and MND are abbreviations for Amyotrophic Lateral Sclerosis and Motor Neuron Disease respectively.  Internationally, the disease is termed ALS/MND.

Although ALS can strike any adult of any age.  The incidence of ALS in the USA remains uncertain due to minimal surveillance studies. Some investigators believe the incidence of ALS is similar to that of multiple sclerosis, four times greater than muscular dystrophy and three times greater than myasthenia gravis.  The National ALS Registry, a program of the US government, is collecting data on the number of ALS cases and requesting people with ALS to register.    

ALS itself is not necessarily fatal when respiratory failure is prevented and treated.  People with ALS do not die directly from motor neuron degeneration, but from respiratory pump failure, if they so choose.  ALS families need to know the options for breathing and living for achieving desired outcomes.

ALS is a neurodegenerative (non-respiratory) disease and results in the progression of respiratory muscle weakness and breathing failure, unless treated.  People with ALS can choose short-term (noninvasive) or long-term (invasive) breathing support and survive well beyond respiratory failure.

The hallmark signs of early respiratory muscle weakness are the inability to fully inhale and exhale, a weak cough and a reduced voice volume.

MECHANICS OF RESPIRATION
WHAT IS A.L.S. (LOU GEHRIG'S DISEASE)

Amyotrophic Lateral Sclerosis (ALS), also known in the USA as “Lou Gehrig’s Disease,” is a degenerative disease of the motor neurons. Motor neurons are the nerve cells in the brain, brain stem and spinal cord that contract the voluntary skeletal muscles for moving the body and pumping air into and out of the lungs.

  
Because ALS selectively destroys motor neurons, ALS is a motor neuron disease.  ALS and MND are abbreviations for Amyotrophic Lateral Sclerosis and Motor Neuron Disease respectively.  Internationally, the disease is termed ALS/MND. 

ABOUT ALS

ALS can strike any adult of any age. The incidence of ALS in the USA remains uncertain due to minimal surveillance studies.  The National ALS Registry, a program of the US government is collecting data on the number of ALS cases and requesting people with ALS to register.       

 

Some investigators have believed the incidence of ALS is similar to that of multiple sclerosis, 4 times greater than muscular dystrophy, and 3 times greater than myasthenia gravis. 

ALS RESEARCH

ALS itself is not necessarily fatal when respiratory failure is prevented and treated.  People with ALS do not die directly from motor neuron degeneration, but from respiratory pump failure, if they so choose.  

 

ALS families need to know the options for breathing and living for achieving desired outcomes.  

ABOUT US

We believe that all ALS patients have the right to accurate, necessary and understandable information on ALS and options for living.  People should know that ALS ultimately results in progressive respiratory muscle weakness and that breathing failure may be prevented or treated if desired. All people with ALS should be given the choice to live, or if they so choose, to refuse or stop life-sustaining treatment and be given the right to comfort care.

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ABOUT US

ALS Care Project is the only 501(c)3 nonprofit organization whose primary mission is to educate on best management of ALS care for best patient outcomes.

ADDRESS

330.492.4ALS (4257)

330.497.1792 - ALS Nurse Line

BELDEN GLASS TOWER

4450 Belden Village St. NW

Ste. 216 - Canton, Ohio 44718​

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