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To educate on best practices for ALS care

based on clinical evidence and experience.


"To achieve best patient outcomes and fulfill patient's wishes."

“Exploring risk factors today gives hope for prevention & cure of ALS tomorrow.”


We believe that all ALS patients have the right to accurate, necessary and understandable information on ALS and options for living.  People should know that ALS ultimately results in progressive respiratory muscle weakness and that breathing failure may be prevented or treated, if desired. All people with ALS should be given the choice to live, or if they so choose, to refuse or stop life-sustaining treatment and be given the right to comfort care.

  • achieve best patient outcomes

  • achieve optimal breathing comfort

  • prevent avoidable complications

  • prevent emergency hospitalizations

  • prevent early mortality

  • prevent unwanted life support

  • fulfill patient wishes

  • spare unnecessary costs for care.

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