To educate on best practices for ALS care
based on clinical evidence and experience.
"To achieve best patient outcomes and fulfill patience wishes."
“Exploring risk factors today gives hope for prevention & cure of ALS tomorrow.”
We believe that all ALS patients have the right to accurate, necessary and understandable information on ALS and options for living. People should know that ALS ultimately results in progressive respiratory muscle weakness and that breathing failure may be prevented or treated, if desired. All people with ALS should be given the choice to live, or if they so choose, to refuse or stop life-sustaining treatment and be given the right to comfort care.
achieve best patient outcomes
achieve optimal breathing comfort
prevent avoidable complications
prevent emergency hospitalizations
prevent early mortality
prevent unwanted life support
fulfill patient wishes
spare unnecessary costs for care.